| The Stuart
Strange Trust was set up by family and friends in memory of Stuart Strange who had started
raising money for research into Wegener's Granulomatosis. In September 1991 we had
never heard of Wegener's Granulomatosis or of any Vasculitis diseases, by April 1992
family and friends knew that come what may no one else was ever going to feel alone
or isolated if it could be avoided.
Initially fund-raising was our primary aim, after all we had to and still want to know
How, What and Why? So Stuart started a sponsored cycle around the UK on an exercise bike,
he managed to raise £36 before becoming too ill to continue, and so the Trust was born. |
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| It
soon became apparent that patients with associated vasculitis diseases like
PAN/MPA (Polyarteritis Nodosa/Microscopic Polyarteritis), CSS (Churg-Strauss Syndrome) and GCA
(Giant Cell Arteritis) also needed support and so the Trust set about finding out about
the other vasculitis diseases as information was asked for. The membership of the Trust
has grown considerably and now consists of a network of support groups nationally, helping
the Trust to achieve its aims, offering support to sufferers, their families and friends
both at home and abroad.
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